Brittney earned her bachelor’s degree in Community Health, with a minor in Psychology, from Whitworth University. With a personal connection to Gould Syndrome, Brittney is passionate about utilizing her education and experiences to make a meaningful impact. She has a background in helping lead projects addressing health disparities and is excited to continue her advocacy work by serving the Gould Syndrome community.

Tim lives in the Boston area. He was diagnosed with Gould Syndrome (COL4A1) in early 2018 and since then has received expert care from the team at Mass General Hospital. His involvement with The Gould Syndrome Foundation, beginning in March of 2024, stems from a desire for everyone who suffers from the syndrome to receive such care, to know they are not alone, and have hope for a better understanding and treatment of the syndrome in the future.

Blakely, a Colorado native now living in Oklahoma with her husband and two sons, has a background in interior design, retail ownership, and brand creation. Currently working as a freelance web designer while home with her youngest son—who was diagnosed with a COL4A1 mutation at four months old—she is passionate about using her skills in outreach, content creation, and marketing to further the mission of The Foundation.

Lacey, a Texas native now living in the Pacific Northwest, has a background in the medical field and special education, helping treat, educate, and support patients and children with special needs. As a parent to a child affected by COL4A1, she founded Gould Talks in 2022 to provide newly diagnosed families and individuals with valuable education and support resources.

“Receiving a COL4A1/A2 diagnosis can feel so overwhelming. I want to help our community know there are resources, education, and people available to help you on this journey.”

Monica, a Bay Area native, has a background in education with a Bachelor's in Community and Regional Development, a Master's in Education, and a teaching credential from UC Davis. She spent six years as an educator before becoming a parent. After a family member was diagnosed with Gould Syndrome, she began volunteering with The Foundation to advocate for the community and support ongoing research.