The Gould Syndrome Foundation is dedicated to empowering and improving the lives of affected individuals and their families through awareness, advocacy, education, and supporting research.
The Gould Syndrome Foundation is a registered non-profit. Established in 2024 and led by volunteers personally affected by Gould Syndrome, The Foundation seeks to empower the community through a variety of outlets. By providing information including educational seminars like Gould Talks, sharing the latest research prepared by industry leaders, and collaborating with the community, The Foundation is proud to connect and support people around the world affected by this rare disease.
EMPOWERING HOPE, ADVANCING DISCOVERY
Core values
The Gould Syndrome Foundation is constantly evolving as more research becomes available and the community grows. While there are currently about 850 individuals affected by Gould Syndrome, this number rises daily as technology and genetic testing advances. With a collaborative, respectful, and educationally-minded approach, The Foundation is dedicated to supporting its mission to empower and improve the lives of affected individuals.