Privacy policy.

TERMS AND CONDITIONS OF USE

IMPORTANT: PLEASE READ THESE TERMS AND CONDITIONS OF USE CAREFULLY BEFORE USING THE GOULD SYNDROME FOUNDATION WEBSITE OR ANY VIDEO, AUDIO, APPLICATIONS, FEATURES OR FUNCTIONALITY AVAILABLE ON OR THROUGH THE WEBSITE (collectively, the “Site”).

By using the Site, you agree to be bound by these Terms and Conditions, including the Privacy Policy. If you do not agree to all of these Terms and Conditions, you are not authorized to use the Site, in which case you should immediately exit and not use the site.

MEDICAL AND HEALTH INFORMATION

You acknowledge and agree that the materials on the Site are provided for information purposes only and without warranties of any kind. The materials on the Site are not meant to be used for self-diagnosis or to replace the services of medical professionals. While The Gould Syndrome Foundation endeavors to keep the materials on the Site current, healthcare information changes rapidly and thus, the materials on the Site should not be relied upon to be fully comprehensive or error free.

The content should not be used to diagnose, treat or cure any medical or health condition nor should it be interpreted as creating any kind of doctor-patient or health/medical advisor relationship. You should NOT rely upon the medical or other professional information or opinions provided and you should always speak to your personal health care provider before beginning, changing or stopping any medication or any treatment for a health problem. You are solely responsible for any decisions, omissions or actions you take based on choosing to seek or not to seek professional medical care, or choosing or not choosing specific treatments. Neither The Gould Syndrome Foundation nor any of its officers, directors, agents, committee members, information providers or content providers shall have any liability for your medical or health decisions based upon, or the results obtained from, the content on the Site.

In certain instances The Gould Syndrome Foundation permits third parties to provide testimonials and information. The Gould Syndrome Foundation may from time to time post articles and other information provided by third parties that might be of interest or benefit to the public. You acknowledge that the opinions and recommendations of third parties contained on the Site are not necessarily those of The Gould Syndrome Foundation or endorsed by The Gould Syndrome Foundation.

LINKS TO THIRD PARTY SITES

The Gould Syndrome Foundation contains links to other websites (“Linked Sites”). The Linked Sites are not under the control of The Gould Syndrome Foundation is not responsible for the contents of any Linked Site, including, without limitation, any link contained in a Linked Site, or any changes or updates to a Linked Site. The Gould Syndrome Foundation is not responsible for webcasting or any other form of transmission received from any Linked Site. The Gould Syndrome Foundation is providing these links to you only as a convenience, and the inclusion of any link does not imply endorsement by The Gould Syndrome Foundation of the site or any association with its operators.

INDEMNIFICATION

As a condition of your access to and use of the Site, you agree to hold The Gould Syndrome Foundation, its officers, directors, employees, agents, attorneys, and suppliers, and each of their respective successors and assigns, harmless from, and indemnify them for, all damages, costs, expenses and other liabilities, including, but not limited to, attorneys’ fees and expenses, relating to any claim arising out of or related to: (i) your access to and use of the Site and the content therein; (ii) your violation of these Terms and Conditions including the Privacy Policy, and any applicable law or the rights of another person or party; (iii) any dispute you have or claim to have with one or more users of the Site.

LIMITATION OF LIABILITY

 In no event and under no circumstances shall The Gould Syndrome Foundation, its officers, directors, employees, agents, and attorneys be liable to you or any third party for special, incidental, punitive or consequential damages (including, without limitation, any loss of profits, lost savings, or loss of data) arising out of your (or any authorized user’s) or any unrelated party’s use or inability to use the Site, or your (or any authorized user’s) or any unrelated party’s reliance or use of information, products or services provided on or through the Internet, or that result from mistakes, omissions, interruptions, deletions of files or other data loss, errors, defects, delays in operation, service or transmission or any failure of performance of the Site.

DISCLAIMER OF WARRANTIES

THE SITES (INCLUDING, WITHOUT LIMITATION, ALL SERVICES AND CONTENT) ARE PROVIDED “AS IS” AND “WITH ALL FAULTS” WITHOUT WARRANTY OF ANY KIND AND THE ENTIRE RISK AS TO SATISFACTORY QUALITY, PERFORMANCE, ACCURACY AND EFFORT IS WITH YOU. There is no warranty, representation or guarantee that the Sites will continuously operate or be error free or that any problems will be corrected, or that any information, software or other material accessible from the Sites is free of viruses, worms, Trojan horses or other harmful components. Further, we do not warrant, guarantee, or make any representations regarding the use of, or the results of the use of the Sites either in terms of its compatibility with hardware or other software, its reliability, currentness, or otherwise; and you rely on the Sites solely at your own risk. ANY AND ALL OTHER REPRESENTATIONS AND WARRANTIES INCLUDING, BUT NOT LIMITED TO, ANY IMPLIED WARRANTIES OF MERCHANTABILITY AND/OR FITNESS OF THE PRODUCT FOR A PARTICULAR USE OR PURPOSE, QUALITY, COURSE OF DEALINGS, USAGE OF TRADE, INACCURACY IN CONTENT CAUSED BY OUR FAILURE TO PERFORM WITH REASONABLE CARE, QUIET ENJOYMENT OR NON-INFRINGEMENT ARE HEREBY EXPRESSLY DISCLAIMED.

The Gould Syndrome Foundation and its officers, directors, employees, agents, attorneys, and suppliers also assume no responsibility, and shall not be liable for, any damages to, or viruses that may infect, your computer equipment or other property on account of your access to, use of, or browsing in the Site or your downloading of any materials, data, text, images, video or audio from the Site.

INDEMNITY

You agree to hold The Gould Syndrome Foundation, its officers, directors, employees, agents and attorneys, harmless from, and indemnify them for, all damages, costs, expenses and other liabilities, including, but not limited to, attorneys’ fees and expenses, relating to any claim arising out of or related to: (i) your access to and use of the Site and the content therein; (ii) your violation of these Terms and Conditions, including the Privacy Policy, and any applicable law or the rights of another person or party; (iii) any dispute you have or claim to have with one or more users of the Site.

PRIVACY POLICY

The Gould Syndrome Foundation believes that addressing concerns about online privacy is critical. The Gould Syndrome Foundation promises to protect the personal information given to us by visitors to The Gould Syndrome Foundation’s website and information included on our electronic mail lists. Any information that you give to The Gould Syndrome Foundation will be held with the utmost care, and will not be used in ways that you have not consented to.

DISCLOSURE OF INFORMATION AND DONOR PRIVACY POLICY

Resale or disclosure of information to third parties: The Gould Syndrome Foundation does not sell, rent, loan, trade, or lease personal information collected on our website to any third party. The Gould Syndrome Foundation respects the privacy of its financial supporters. We will not share or sell a donor's personal information with any third party, nor send donor mailings on behalf of other organizations.

COPYRIGHT AND PHOTO USE POLICY

All information and pages are Copyright © 2025 The Gould Syndrome Foundation. All rights reserved. Contact us for permission to reprint any portion of this site or materials displayed on this site for purposes other than personal, non-commercial use. No works or photos displayed on this website may be reproduced in any way or form without specific written permission from The Gould Syndrome Foundation. All such requests for permission must be made in writing and submitted here.

ENFORCEMENT

If for any reason you believe that The Gould Syndrome Foundation has not adhered to these privacy principles, please notify us by e-mail here, and we will endeavor to review and correct the problem promptly. Please use the words "Privacy Policy" in the Subject line.

CHILDRENS PRIVACY

Because we care about the safety and privacy of children online, we comply with the Children's Online Privacy Protection Act of 1998 (COPPA). COPPA and its accompanying FTC regulation establish United States federal law that protects the privacy of children under 13. Our site is not intended to solicit information of any kind from children under 13.

It is possible that due to fraud or deception by others, we may unknowingly receive information pertaining to children under 13. If we are notified of this, once we have verified the information, we will promptly obtain parental consent or otherwise delete the information from our servers. If you want to notify us of our receipt of information in relation to children under 13, please do so by emailing us here.

INTERNATIONAL INFORMATION TRANSFERS

Any personally identifiable information that you provide to The Gould Syndrome Foundation will be collected directly on servers located in the United States and maintained on servers located in the United States or other countries. If you are located outside the United States, this means that any information you provide will be transferred abroad. While The Gould Syndrome Foundation is committed to providing your information with the highest level of privacy protection, we believe you should know that the general level of protection for personal information in the United States may not be the same as that provided in other countries.

TERMS AND MODIFICATIONS TO PRIVACY POLICY

By using this website, you signify your agreement to the terms of our privacy policy. If you do not agree with these terms, please do not disclose any personal information through this site. The Gould Syndrome Foundation may modify this privacy policy at any time at its discretion and modifications are effective upon being posted on this site. You are responsible for reviewing this privacy policy periodically to ensure that you are aware of any changes to it.

COMPLETE AGREEMENT

These Terms and Conditions and The Gould Syndrome Foundation Privacy Policy constitute the entire agreement between you and The Gould Syndrome Foundation with respect to the use of the Site.

If you have any questions or concerns regarding privacy on the Gould Syndrome Foundation website, please contact us here.

This policy was last updated on December 17, 2024.