events
If you have a fundraiser or event you would like highlighted on the website, please submit your event information here.
2nd COL4A1/2 International Conference
View more information about the International Conference here.
Rare Disease Day
Stay tuned for more information on how The Gould Syndrome Foundation is celebrating Rare Disease Day in 2025. Find out more about recognizing Rare Disease Day and how you can contribute to spread awareness here.
Gould Syndrome Awareness Day 2025
April 12th marks Gould Syndrome Awareness Day worldwide. A few ways to honor our Gould Syndrome community on this day:
Physically: Wear the color gold to raise awareness
Financially: Host a fundraiser to contribute to research and treatments (click here for a brand kit, including QR codes to share to raise funds)
Socially: Post on social platforms (click here for a press release) to spread the word about this rare disease, the organization behind the name, and raise awareness
UCSF Opens World’s First Center of Excellence for Gould Syndrome
The UCSF Gould Syndrome Center, a service of the Pediatric Neurology Program, is the world's first center dedicated to supporting patients with Gould syndrome.