events
If you have a fundraiser or event you would like highlighted on the website, please submit your event information here. If you are hosting a fundraiser for The Gould Syndrome Foundation and would like branding material for merchandise or social media or a personalized fundraising page including QR code for donations, please email us here.
Rare Disease Day
Stay tuned for more information on how The Gould Syndrome Foundation is celebrating Rare Disease Day in 2025. Find out more about recognizing Rare Disease Day and how you can contribute to spread awareness here.
Gould Syndrome Awareness Day 2025
April 12th marks Gould Syndrome Awareness Day worldwide. A few ways to honor our Gould Syndrome community on this day:
Physically: Wear the color gold to raise awareness
Financially: Host a fundraiser to contribute to research and treatments (template & QR code to come)
Socially: Post on social platforms (social templates to come) to spread the word about this rare disease, the organization behind the name, and raise awareness.
2nd COL4A1/2 International Conference
View more information about the International Conference here.
UCSF Opens World’s First Center of Excellence for Gould Syndrome
The UCSF Gould Syndrome Center, a service of the Pediatric Neurology Program, is the world's first center dedicated to supporting patients with Gould syndrome.