Educational Videos

Webinar Highlights:

  • Strokes and Other Clinical Manifestations: Key findings related to COL4A1/A2-related disorders.

  • Investigating Biomarkers: Insights into the importance and methods for developing ways to measure and track disease presence and progression.

  • Natural History Studies and Specialized Care: An introduction to the Young Genetic Stroke Alliance and the critical role we play in advancing research through participation. Updates on enrollment opportunities and details about the second-opinion/specialized care program at Massachusetts General Hospital (MGH).

  • Preclinical Models: Ongoing laboratory research efforts toward developing a preclinical model for therapeutic testing.

  • Gene Therapy: Updates on advancements, potential applications, and ongoing challenges.

  • And much more!

Gould Talks

Get to know more about this rare disease through informative discussions between Education & Advocacy Chair Lacey Korstvedt and researchers from around the world paving the way for new treatment and care options for those affected.

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  • Discussion 1 • Dr. Doug Gould

    Discussion 1 • Dr. Doug Gould

    An introduction to Gould Syndrome featuring Dr. Gould. In this video we go over the basics of this rare condition, FAQ’s, management & resources, and how you can get involved in advancing research!