Educational Videos
Webinar Highlights:
Strokes and Other Clinical Manifestations: Key findings related to COL4A1/A2-related disorders.
Investigating Biomarkers: Insights into the importance and methods for developing ways to measure and track disease presence and progression.
Natural History Studies and Specialized Care: An introduction to the Young Genetic Stroke Alliance and the critical role we play in advancing research through participation. Updates on enrollment opportunities and details about the second-opinion/specialized care program at Massachusetts General Hospital (MGH).
Preclinical Models: Ongoing laboratory research efforts toward developing a preclinical model for therapeutic testing.
Gene Therapy: Updates on advancements, potential applications, and ongoing challenges.
And much more!
Gould Talks
Get to know more about this rare disease through informative discussions between Education & Advocacy Chair Lacey Korstvedt and researchers from around the world paving the way for new treatment and care options for those affected.