People afflicted with Gould Syndrome

Gould Syndrome Foundation

We are a registered 501(c)3 Nonprofit dedicated to providing hope and help to children and adults with Gould Syndrome; affecting COL4A1 and COL4A2 genes.

Gould Syndrome is an ultra rare genetic, multi-system disorder. 

Our Mission

We connect and coordinate our families with researchers and medical professionals to get our disease and management coordination into the medical realm.

Education

COL4A1/COL4A2 gene mutations description, symptoms and the sub-diagnosis.

Advocacy

Teaching families how to advocate for their loved ones and access medical information.

Connecting

Doctors and researchers  to bring research and medical therapeutic options to those affected.
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NORD Platinum Member 2021
Guidestar silver seal of transparency 2020

Gould Syndrome Foundation

We are a registered 501(c)3 Nonprofit dedicated to providing hope and help to children and adults with Gould Syndrome; affecting COL4A1 and COL4A2 genes.
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