Who We Are

Board Members

Sara-Ellen Burnett

Sara- Ellen Burnett, attended Stetson University, where she studied European History with a focus on World War II. Directly following, she moved to Saint Petersburg, Florida, where she has resided for the last fourteen years. Sara-Ellen is a small business Owner/Operator of The Lay Low Chateau Hospitality LLC., a private dining company specializing in haute […]

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Brian Corrigan

Brian is a Case Management Associate at United Cerebral Palsy of Greater Cleveland in the Leafbridge Therapy Department. He assists families in navigating the challenges they face in day to day life while advocating and providing services for their children with varying disabilities. Brian sits on the Maximum Accessible Housing Board of Directors. This allows […]

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Catherine Fauls

Catherine Fauls, licensed PT specializing in geriatrics and post surgical rehabilitation joins the Board with extensive knowledge of the physical human body and therapeutic modalities. She has spent time volunteering and fundraising at Children's Inc, a large 501(c)3 that specialized in Childcare and development across greater Kentucky and Ohio. Her free time is spent with […]

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Jason McGee

Jason has spent 14 years in Sales Management and 11 years in Investment Services/Retail Banking where he has served as a mentor and held many leadership roles within his organizations. He currently has professional licences of Series 6, 63 and also his lIfe and Health. He also has more than 15 years experience in Property […]

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Sara Reddick

Sara Reddick is the co-owner of Torin Productions, a video production company, in Portland, Oregon. She has a college background in creative writing, editing and grant writing. She spent 15 years of her professional career as a Holistic Nutrition Therapist and Personal Trainer. She joins the board of the Gould Syndrome Foundation as a bereaved […]

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Donald Burnett

Donald Burnett is a Florida native, from Siesta Key. He is an Executive Chef of a noted restaurants in Downtown Saint Petersburg, Florida. He spends his free time extensively volunteering in the non-profit realm; feeding those in need in the greater Tampa Bay area and training young chefs in at-risk communities. He hopes to expand […]

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Ann Brown, PhD.

Ann is an Assistant Professor in Exercise, Sport and Health Sciences and Director of theHuman Performance Laboratory at the University of Idaho. She earned a PhD from Florida State University where she began her research focused on the interactions between metabolism, body composition and performance and includes the effects of dietary and exercise interventions to […]

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Advisory Board

Doug Gould Ph.D.

Dr. Gould is a Professor, Vice-Chair for Research and the Denise B. Evans Endowed Chair in Ophthalmology in the Department of Ophthalmology at University of California, San Francisco. He earned a PhD in Medical Genetics at the University of Alberta in Edmonton, Canada and performed postdoctoral studies at The Jackson Laboratory in Bar Harbor, Maine. […]

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Faruk Örge, MD

Dr. Faruk H. Örge MD, FAAO, FAAP, is the William R. and Margaret E. Althans Chair and Professor in Pediatric Ophthalmology, Professor of Ophthalmology and Pediatrics at CWRU and Director of Pediatric Ophthalmology and Adult Strabismus at the Rainbow Babies and Children’s Hospital, one of the few pediatric hospitals ranked by US News and World […]

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Carly Wilbur, MD

Dr. Carly Wilbur is a pediatrician with Rainbow Babies and Children’s Hospital in Cleveland, Ohio. She graduated from Barnard College, Columbia University in New York City, and earned her M.D. from Albert Einstein College of Medicine. She returned to her hometown of Cleveland to complete her internship and residency at the Children’s Hospital at the […]

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Asa Brown JD/MS., Esq.

Asa is a business-minded legal thinker who focuses his energy on advising and guiding early-stage startups on myriad issues regarding intellectual property, business governance, and entity formation. He has experience in working both the private and public sector in both business and legal roles. He has a passion for learning new topics, meeting new people, and helping […]

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Staff

Sheena McGee, BCPA

Sheena McGee started the Gould Syndrome Foundation, on the floor of her living room just 11 months after her daughter, Zeeva's 14th operation. She knew there was a distinct need for medical and scientific collaboration for community she was a part of through her daughter's COL4A1 diagnosis. In addition to homeschooling Zeeva and running the […]

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Gould Syndrome Foundation

We are a registered 501(c)3 Nonprofit dedicated to providing hope and help to children and adults with Gould Syndrome; affecting COL4A1 and COL4A2 genes.
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