Who We Are

Board Members

Sara-Ellen Burnett

Sara- Ellen Burnett, attended Stetson University, where she studied European History with a focus on World War II. Directly following, she moved to Saint Petersburg, Florida, where she has resided […]

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Brian Corrigan

Brian is a Case Management Associate at United Cerebral Palsy of Greater Cleveland in the Leafbridge Therapy Department. He assists families in navigating the challenges they face in day to […]

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Catherine Fauls

Catherine Fauls, licensed PT specializing in geriatrics and post surgical rehabilitation joins the Board with extensive knowledge of the physical human body and therapeutic modalities. She has spent time volunteering […]

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Jason McGee

Jason has spent 14 years in Sales Management and 11 years in Investment Services/Retail Banking where he has served as a mentor and held many leadership roles within his organizations. […]

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Sara Reddick

Sara Reddick is the co-owner of Torin Productions, a video production company, in Portland, Oregon. She has a college background in creative writing, editing and grant writing. She spent 15 […]

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Donald Burnett

Donald Burnett is a Florida native, from Siesta Key. He is an Executive Chef of a noted restaurants in Downtown Saint Petersburg, Florida. He spends his free time extensively volunteering […]

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Ann Brown, PhD.

Ann is an Assistant Professor in Exercise, Sport and Health Sciences and Director of theHuman Performance Laboratory at the University of Idaho. She earned a PhD from Florida State University […]

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Advisory Board

Doug Gould Ph.D.

Dr. Gould is a Professor, Vice-Chair for Research and the Denise B. Evans Endowed Chair in Ophthalmology in the Department of Ophthalmology at University of California, San Francisco. He earned […]

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Faruk Örge, MD

Dr. Faruk H. Örge MD, FAAO, FAAP, is the William R. and Margaret E. Althans Chair and Professor in Pediatric Ophthalmology, Professor of Ophthalmology and Pediatrics at CWRU and Director […]

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Carly Wilbur, MD

Dr. Carly Wilbur is a pediatrician with Rainbow Babies and Children’s Hospital in Cleveland, Ohio. She graduated from Barnard College, Columbia University in New York City, and earned her M.D. […]

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Asa Brown JD/MS., Esq.

Asa is a business-minded legal thinker who focuses his energy on advising and guiding early-stage startups on myriad issues regarding intellectual property, business governance, and entity formation. He has experience […]

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Staff

Sheena McGee, BCPA

Sheena McGee started the Gould Syndrome Foundation, on the floor of her living room just 11 months after her daughter, Zeeva's 14th operation. She knew there was a distinct need […]

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Danielle Boyce PhD.

Danielle Boyce is a researcher and award-winning patient advocate with more than 20 years of professional experience. She holds a Master’s in Public Health with a concentration in epidemiology and […]

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Gould Syndrome Foundation

We are a registered 501(c)3 Nonprofit dedicated to providing hope and help to children and adults with Gould Syndrome; affecting COL4A1 and COL4A2 genes.
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