Our grassroots 501 (c) 3 non-profit started in 2018 as family, looking to help connect our small community of COL4A1/A2 members with the medical community for therapeutic/medical interventions and medical and scientific awareness.

We have a volunteer based Board of Directors, Medical and Legal Advisory Board and unpaid Staff. One hundred percent of your donation will go to funding our mission to provide advocacy and awareness to the medical and affected community alike.

We are in the process of updating the site and how we handle donations. We will update this page when our new process is in place.

Gould Syndrome Foundation

We are a registered 501(c)3 Nonprofit dedicated to providing hope and help to children and adults with Gould Syndrome; affecting COL4A1 and COL4A2 genes.
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