Archived Events

Rare Disease Day 2020

Date: February 29th, 2020

1. With the Covid-19 Pandemic affecting the world, 101 countries had friends and families show their support by #showingtheirstripes and changing banners on their Facebook pages. Board Member Sara Reddick and LulaRoe Team Gheen raised over $1050 in a clothing Boutique Fundraiser online!

2. The FDA Celebrated first time ever Rare Disease Day in 2020 and featured on their promotional cover a child with Gould Syndrome and her caregiver.

NORD 2019 Summit Rare Disease and Orphan Products Breakthrough

Gould Syndrome Foundation had a full scholarship to attend the conference, the largest attendance record in history. We were also accepted into the poster demonstration and had a Gould Syndrome Poster presented by Dr. Douglas Gould at the event.

Rare Disease Day 2019

Gould Syndrome Foundation (Originally named COL4A1 Foundation) had its first-ever Fundraiser at Kendra Scott in Woodmere Ohio. We raised over $400 for the start of the Foundation