Naomi Singleton

Board Member Emeritus

Naomi Singleton having Gould Syndrome knows firsthand what some of the struggles patients and families go through; having special insight on controlling some of the symptoms that come with this disease, she helps families find answers to various questions and needs. Naomi has been volunteering with nonprofits for years, eventually focused on work within the special needs and medical community. She strives to be a novelist in the future, and to help further research to find a cure.

Gould Syndrome Foundation

We are a registered 501(c)3 Nonprofit dedicated to providing hope and help to children and adults with Gould Syndrome; affecting COL4A1 and COL4A2 genes.
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