Danielle Boyce is a researcher and award-winning patient advocate with more than 20 years of professional experience. She holds a Master’s in Public Health with a concentration in epidemiology and a doctorate in public administration. For nearly fifteen thirteen years she has worked as a research data analyst and statistician at Johns Hopkins University. She was a member of the FDA expert panel that recommended the approval of Epidiolex, the first CBD-based medication indicated for Dravet syndrome and Lennox-Gastaut Syndrome (LGS). She has authored and co-authored dozens of peer-reviewed journal articles, a children’s book, and writes a popular blog. Danielle lives in Pennsylvania with her husband and four children. Her son, Charlie, had infantile spasms and now LGS. The cause of Charlie’s seizures is still a mystery, but Danielle connected with other parents in the Gould Syndrome community and wants to use her skills to advance the body of scientific knowledge on this condition.
