Gould Syndrome In the news ...

Ashley’s Radiothon Story

For most of her pregnancy, Megan had no reason to suspect anything was wrong with her baby. At 36 weeks, an ultrasound turned her family’s world upside down. Her baby was unusually small and something was wrong with her brain. A few days later, Ashley was born. She exhibited severe microcephaly, a condition where the head is smaller […]

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Darth Vader surprises 8-year-old patient with rare disorder

HOUSTON, Texas (KTRK) -- An 8-year-old boy at Memorial Hermann Hospital got a surprise from a galaxy far, far away. Darth Vader and some Storm Troopers stepped out of the dark side to bring Ezra Menke a smile. Read the whole story at https://abc13.com/society/darth-vader-surprises-8-year-old-patient-with-rare-disorder/5735564/

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Boy with Gould Syndrome sworn in as honorary firefighter, deputy constable

KLEIN, Texas (KTRK) -- The Klein Fire Dept. and the Harris County Precinct 4 Constable's Office welcomed their newest member on Sunday, a very special young man in the fight of his life. Ezra Menke was sworn-in as an honorary deputy constable and made an honorary firefighter at a surprise event on Sunday. Full Story

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Finding the best care for Zeeva

Girl with Gould Syndrome finding Epileptic answers with Boston Children’s Neurosurgery team

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Gould Syndrome Foundation

We are a registered 501(c)3 Nonprofit dedicated to providing hope and help to children and adults with Gould Syndrome; affecting COL4A1 and COL4A2 genes.
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