Gould Syndrome Awareness Day

April 12th 2020, will mark our first awareness day, the families and caregivers affected with Gould Syndrome selected this day because of the "4" representing the Collagen IV location and "1,2" for the Alpha chain 1 and 2 locations. The Awareness logo was designed by family friends of a loved one affected with Gould Syndrome in South Africa.

Teacher and Father, Jeff Detlefsen created Awareness Video for April 12th, Gould Syndrome Awareness Day

Gould Syndrome Foundation

We are a registered 501(c)3 Nonprofit dedicated to providing hope and help to children and adults with Gould Syndrome; affecting COL4A1 and COL4A2 genes.
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